Neurology

With WHS over 90% of kids experience seizures, this has been the one thing that I have had the hardest time with. There are so many types of seizures, some fast and mild and some are long and hard. Since Noelle was born I have been carefully watching her every move, questioning twitches and hoping I wouldn't miss an "episode".



I have now seen a couple of neurologists, the first was very passive and told me not to worry about seizures unless it was a grand maul lasting longer than 2-3 minutes. As a mom this didn't sit well with me. If my child is having short mild episodes the longer I don't treat those the more likely the seizures could escelate into something much worse. I left the first appointment angry, disappointed, furious. This doctor acted like seizures were no big deal especially in a child with other obstacles and health issues.



On Friday we decided to take a trip to LA area to see another pediatric neurologist, she was awesome and made up for the terrible experience we had at the previous neurology appointment. She went over what to do, what to look for, non medical/natural treatment, how seizures occur and how they effect the brain and child. All these things were so important for us to hear and she answered all my questions and more!



We have no proof at this time of seizures, most WHS kids have fever induced seizures, so we hope to keep her fever free as long as possible and hope to not have to deal with seizures for a while if at all. If we suspect seizures and they are reoccurring then we will begin to medicate and do tests. We would be lucky if this was something we could avoid, so we will cross our fingers we can keep this precious little one seizure free!