3 months old

How did 3 months already go by? At three months her sisters are trying to teach her how to play cards. This little one has been such a blessing in our lives. She has kept us very busy and taught us more than one could imagine.

At 3 months old Noelle is...

• Trying to smile
• Still wakes several times a night
• Weighs 4 pounds! (Finally!) her nurse and I may have jumped with joy when we saw the scale.
• Has had 2 surgeries
• Is seeing 12 different doctors/specialists
• Been to 48 appointments (86 if you count all the appointments I had to go to while I was pregnant with her) I wish this number of appointments was a joke. No wonder I feel so over whelmed and can't keep up with ANYTHING.
• Spent 23 days in NICU (21 days after birth and 2 days post eye surgery at two months old)
• Has stollen the heart's of many

I am amazed by Noelle's sweet demeanor and precious personality. We sure love this little thing!

Dolls

Daily I am greeted with shocking moments. Moments that stop me in my tracks and make me panic. Until I realize that there is a doll laying next to Noelle. Sometimes the doll is tenderly placed next to Noelle, other times the doll is upside down suffocated with blankets with only her feet exposed. Many times I will find a doll in the car seat, swing, or bed and I'm struck with fear as I try to figure out who and how Noelle was moved from one place to the other, until I realize it's just a doll.

A big thanks to Sadie and Hazel for keeping me on my toes... Even if one is broken.

4 ounces

This wee one has been gaining weight. Last week she increased 2 ounces and this week she increased another 2 ounces! She is setting weight gaining records! She also go some blood work done today for her kidneys. Stay tuned for info on her kidney status. We are praying the have grown and are functioning better.

Accomplishing goals

We have so many appts and weight checks with Noelle. The doctors are following her progress closely. Each week we hope for 1 ounce of weight gain. Many weeks we have no gain, some loss, or on occasion we see an increase.

With WHS these kids will never be the same weight or size as an average baby. They have their own growth chart. At 12 month old WHS baby is 8-14 pounds.

This past week we saw Noelle's biggest weight gain ever. She gained 2 ounces! She is almost to 4 pounds! 3 pounds 14 ounces, hoping for another 2 ounce gain this week!